Anticipatory grief (AG) has been studied, debated, and written about for several decades. This type of grief is also recognized in hospice and palliative care (HPC). The question, however, is whether the reality of AG is sufficiently upheld by professionals at the point of concrete service delivery. In other words, is AG a mere concept or is everyday practice of HPC duly informed of AG as evidenced by the resulting care delivery?
LindemannE. The symptomatology and management of acute grief. Am J of Psychiatry. 1944;151(6 suppl):141–148.
2.
Kubler-RossE. On Death and Dying. NY: Touchstone; 1969.
3.
WordenJW. Grief Counseling and Grief Therapy: A Handbook for the Mental Health Practitioner. 4th ed. NY: Springer; 2009.
4.
FultonR. Anticipatory mourning: a critique of the concept. Mortality. 2003;8(4):342–351.
5.
CorrCA. Anticipatory grief and mourning. In: DokaKJTucciAS eds. Beyond Kubler-Ross: New Perspectives on Death, Dying and Grief. Washington, DC: Hospice Foundation of America; 2011: 17–30.
6.
JohanssonAKSundhVWijkHGrimbyA. Anticipatory grief among close relatives of persons with dementia in comparison with close relatives of patients with cancer. Am J Hosp Palliat Med. 2013;30(1):29–34.
7.
GlickIOWeissRSParkesCM. The First Year of Bereavement. NY: John Wiley & Sons; 1974.
8.
EvansAJ. Anticipatory grief: a theoretical challenge. Palliat Med. 1994;8(2):159–165.
9.
GarandLLinglerJHDeardorfKE. Anticipatory grief in new family caregivers of persons with mild cognitive impairment and dementia. Alz Dis Assoc Disord. 2012;26(2):159–165.
10.
RosenblattPC. Bitter, Bitter Tears: 19th Century Diarists and 20th Century Theories. Minneapolis: University of Minneapolis Press; 1983.
11.
StroebeWStroebeMSDomittnerG. Individual and situational differences in recovery from bereavement: a risk group identified. J Soc Iss. 1988;44(3):143–158.
12.
SimonJL. Anticipatory grief: recognition and coping. J Palliat Med. 2008;11(9):1280–1281.
13.
DokaKJ. Counseling Individuals With Life-Threatening Illness. NY: Springer; 2009.
14.
RandoTA. Clinical Dimensions of Anticipatory Mourning. Champaign: Research Press; 2000.
15.
SchulzRMendelsohnABHaleyWE. End-of-life care and the effects of bereavement on family caregivers of persons with dementia. N Eng J Med. 2003;349(20):1936–1942.
16.
BengTSGuanNCSeangLK. The experiences of suffering of palliative care informal caregivers in Malaysia: a thematic analysis. Am J Hosp Palliat Care. 2013;30(5):473-489.
17.
WakefieldJC. Is complicated/prolonged grief a disorder?: why the proposal to add a category of complicated grief disorder to the DSM-V is conceptually and empirically unsound. In: StroebeMSchutHvan den BoutJ eds. Complicated Grief: Scientific Foundations for Health Care Professionals. NY: Routledge; 2013: 99–114.
18.
FreudS.Mourning and melancholia. In: StracheyJ, ed. On the History of the Psycho-Analytic Movement: Papers on Metapsychology and Other Works. Standard ed. London: Hogarth Press; 1917:243–258.
19.
BoelenPAPrigersonHG. Prolonged grief disorder as a new diagnostic category in DSM-V. In: StroebeMSchutHvan den BoutJ eds. Complicated Grief: Scientific Foundations for Health Care Professionals. NY: Routledge; 2013:85–98.
20.
ShearMKSimonNWallM. Complicated grief and related bereavement issues for DSM-5. Depres Anxiety. 2011;28(2):103–117.
21.
WakefieldJC. DSM-5 grief scorecard: assessment and outcomes of proposals to pathologize grief. World Psych. 2013;12(2):171–173.
22.
EgnewTR. Suffering, meaning, and healing: challenges of contemporary medicine. Ann Fam Med. 2009;7(2):170–175.
23.
BraunMJBergDH. Meaning reconstruction in the experience of parental bereavement. Death Stud. 1994;18(2):105–129.
24.
MoonPJ. Bereaved elders: transformative learning in late life. Adu Ed Quart. 2011;61(1):22–39.
25.
BonannoGAKaltmanS. The varieties of grief experience. Clin Psyc Rev. 2001;21(6):705–734.
26.
CoelhoAMMayraADAntónioB. Palliative care caregivers’ grief mediators: a prospective study. Am J of Hosp Palliat Med. 2016;33(4):346–353.
27.
GhesquiereAHaidarYMShearMK. Risks for complicated grief in family caregivers. J Soc Work End Life Palliat Care. 2011;7(2-3):216–240.
28.
BurkeLANeimeyerRA. Prospective risk factors for complicated grief: a review of the empirical literature. In: StroebeMSchutHvan den BoutJ eds. Complicated Grief: Scientific Foundations for Health Care Professionals. NY: Routledge; 2013:145–161.
29.
ShuterPBeattieEEdwardsH. An exploratory study of grief and health-related quality of life for caregivers of people with dementia. Am J of Alz Dis Other Dem. 2013;29(4):379–385.
30.
PeriyakoilVSHallenbeckJ. Identifying and managing preparatory grief and depression at the end of life. Am Fam Phys. 2002;65(5):883–890.
31.
KehlKA. How hospice staff members prepare family caregivers for the patient’s final days of life: an exploratory study. Palliat Med. 2015;29(2):128–137.
32.
FowlerNRHansenASBarnatoAEGarandL. Association between anticipatory grief and problem solving among family caregivers of persons with cognitive impairment. J Aging Health. 2013;25(3):493–509.
33.
Otis-GreenS. Embracing the existential invitation to examine care at the end of life. In: QuallsSHKasl-GodleyJE eds. End-of-Life Issues, Grief, and Bereavement: What Clinicians Need to Know. Hoboken, NJ: John Wiley & Sons, Inc.; 2011:310–324.
34.
StradaEA. Professional self-care. In: QuallsSHKasl-GodleyJE eds. End-of-Life Issues, Grief, and Bereavement: What Clinicians Need to Know. Hoboken, NJ: John Wiley & Sons, Inc.; 2011:294–309.
35.
MoonPJ. Making explicit the contention in hospice care. Am J Hosp Palliat Med. 2009;26(6):432–438.
36.
TreadwayMTZaldDH. Reconsidering anhedonia in depression: lessons from translational neuroscience. Neurosci Biobehav Rev. 2011;35(3):537–555.
37.
RobinsonSKissaneDWBrookerJBurneyS. A review of the construct of demoralization: history, definitions, and future directions for palliative care. Am J Hosp Palliat Med. 2016;33(1):93–101.
38.
SchonD. Educating the Reflective Practitioner. NY: Basic Books; 1987.
39.
MerriamSBCaffarellaRSBaumgartnerLM. Learning in Adulthood: A Comprehensive Guide. 3rd ed. John Wiley & Sons, Inc.; 2007.