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Abstract

Disability care is an understudied yet important phenomenon within the realm of caring media studies. It not only adds another identity-based lens for caring media studies but also proposes new questions at the intersection of media, disability and cultural studies. This study proposes a Chinese contextualized understanding of disability caring media, which may have broader implications in other contexts, even a global one. Mainly based on actor-network theory (ANT), this study looks at the smartphone as a new condition and a key actor in the emerging digital disability care actor-network to examine various modes of connections and associations, especially the application-network, the device-network, and the organization-network. This study seeks to provide a better understanding as to how meanings and technologies are enacted together in everyday caring practices, and how social dynamics are assembled and reassembled in contemporary disability caring media settings.

Keywords

actor-network theory (ANT)care digital disability disabled people smartphone

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References

Abrams

Gibson

(2017) Putting Gino’s lesson to work: Actor-network theory, enacted humanity, and rehabilitation. Health 21(4): 425–440.

Admon-Rick

(2014) Impaired encoding: Calculating, ordering, and the ‘disability percentages’ classification system. Science, Technology, & Human Values 39(1): 105–129.

Alper

(2016) Giving Voice: Mobile Communication, Disability, and Inequality. Cambridge, MA: MIT Press.

Baron

Gomez

(2016) The associations between technologies and societies: The utility of actor-network theory. Science, Technology and Society 21(2): 129–148.

Blume

Galis

Pineda

(2014) Introduction: STS and disability. Science, Technology, & Human Values 39(1): 98–104.

CDPF (China Disabled Persons’ Federation) (2012) Disability statistics in China up to 2010. Available at: http://www.cdpf.org.cn/sjzx/cjrgk/201206/t20120626_387581.shtml (accessed 12 July 2019).

Chen

Mao

Qiu

(2018) Super-sticky design and everday cultures. In: Chen

Mao

Qiu

(eds) Super-sticky Wechat and Chinese Society. Bingley: Emerald Publishing, pp. 47–76.

CNNIC (2019) The 43rd China Statistical Report on Internet Development. Available at: http://www.cnnic.net.cn/hlwfzyj/hlwxzbg/hlwtjbg/201902/P020190228510533388308.pdf (accessed 12 December 2019).

Cui

(2016) Beyond ‘connected presence’: Multimedia mobile instant messaging in close relationship management. Mobile Media & Communication 4(1): 19–36.

10.

de la Bellacasa

(2017) Matters of Care: Speculative Ethics in More Than Human Worlds. Minnesota, MN: University of Minnesota Press.

11.

Diedrich

(2005) Introduction: Genealogies of disability. Cultural Studies 19(6): 649–666.

12.

Ellcessor

(2016) Restricted Access: Media, Disability, and the Politics of Participation. New York: NYU Press.

13.

Fenwick

Edwards

(2010) Actor-Network Theory in Education. London: Routledge.

14.

Fisher

Jing

(2008) Chinese disability independent living policy. Disability & Society 23(2): 171–185.

15.

Fisher

Shang

(2011) Absent role of the state: Analysis of social support to older people with disabilities in rural China. Social Policy & Administration 45(6): 633–648.

16.

Flynn

(2017) Engaging with materialism and material reality: Critical disability studies and economic recession. Disability & Society 32(2): 143–159.

17.

Gad

Jensen

(2010) On the consequences of post-ANT. Science, Technology, & Human Values 35(1): 55–80.

18.

Galis

(2011) Enacting disability: How can science and technology studies inform disability studies? Disability & Society 26(7): 825–838.

19.

Galis

Lee

(2014) A sociology of treason: The construction of weakness. Science, Technology, & Human Values 39(1): 154–179.

20.

Goggin

(2016) Disability and mobilities: Evening up social futures. Mobilities 11(4): 533–541.

21.

Goggin

Newell

(2000) An end to disabling policies? Toward enlightened universal service. The Information Society 16(2): 127–133.

22.

Goggin

Newell

(2003) Digital Disability: The Social Construction of Disability in New Media. Lanham, MD: Rowman and Littlefield.

23.

Goggin

Newell

(2006) Editorial comment: Disability, identity, and interdependence: ICTs and new social forms. Information, Communication & Society 9(3): 309–311.

24.

Goggin

Fisher

(2019) Disability, technology innovation and social development in China and Australia. Journal of Asian Public Policy 12(1): 34–50.

25.

Hamraie

(2013) Universal design research as a new materialist practice. Disability Studies Quarterly 33(4). doi: 10.18061/dsq.v32i4.3246

26.

Hamraie

(2015) Cripping feminist technoscience. Hypatia: Journal of Feminist Philosophy 30(1): 307–313.

27.

Hamraie

(2018) Mapping access: Digital humanities, disability justice, and socio-spatial practice. American Quarterly 70(3): 455–482.

28.

Hine

(2000) Virtual Ethnography. London: Sage.

29.

Hjorth

Burgess

Richardson

(2012) Studying Mobile Media: Cultural Technologies, Mobile Communication, and the Iphone. New York: Routledge.

30.

Hockey

(2002) Interviews as ethnography? Disembodied social interaction in Britain. In: Rapport

(ed.) British Subjects: An Anthropology of Britain. Oxford: Berg, pp. 209–222.

31.

Horst

(2006) The blessings and burdens of communication: Cell phones in Jamaican transnational social fields. Global Networks 6(2): 143–159.

32.

Huang

Miao

(2020) Re-domesticating social media when it becomes disruptive: Evidence from China’s ‘super app’ WeChat. Mobile Media & Communication. doi: 10.1177/2050157920940765.

33.

Kozinets

(2010) Netnography: Doing Ethnographic Research Online. London: Sage.

34.

Kumari Campbell

(2004) The case of Clint Hallam’s wayward hand: Print media representations of the ‘uncooperative’ disabled patient. Continuum 18(3): 443–458.

35.

Latour

(1988) Mixing humans and nonhumans together: The sociology of a door-closer. Social Problems 35(3): 298–310.

36.

Latour

(1996) On actor–network theory: A few clarifications. Soziale Welt 47(4): 369–381.

37.

Latour

(2005) Reassembling the Social: An Introduction to Actor-Network Theory. Oxford: Oxford University Press.

38.

Latour

(2011) Networks, societies, spheres: Reflections of an actor-network theorist. International Journal of Communication 5(1): 796–810.

39.

Law

(1994) Organizing Modernity. Oxford: Blackwell.

40.

Law

(2004) After Method: Mess in Social Science Research. London: Routledge.

41.

Law

(2009) Actor network theory and material semiotics. In: Turner

(ed.) The New Blackwell Companion to Social Theory. Oxford: Blackwell, pp. 141–158.

42.

Levitt

(2017) Exploring how the social model of disability can be re-invigorated: In response to Mike Oliver. Disability & Society 32(4): 589–594.

43.

Lin

Yang

Zhang

(2018) To include, or not to include, that is the question: Disability digital inclusion and exclusion in China. New Media & Society 20(12): 4436–4452.

44.

Lin

Zhang

Yang

(2019) Self as enterprise: Digital disability practices of entrepreneurship and employment in the wave of ‘Internet+ disability’ in China. Information, Communication & Society 22(4): 554–569.

45.

Ling

Horst

(2011) Mobile communication in the global south. New Media & Society 13(3): 363–374.

46.

Madianou

(2016) Ambient co-presence: Transnational family practices in polymedia environments. Global Networks 16(2): 183–201.

47.

Madianou

Miller

(2011) Mobile phone parenting: Reconfiguring relationships between Filipina migrant mothers and their left-behind children. New Media & Society 13(3): 457–470.

48.

Mauldin

(2014) Precarious plasticity: Neuropolitics, cochlear implants, and the redefinition of deafness. Science, Technology, & Human Values 39(1): 130–153.

49.

McLean

Hassard

(2004) Symmetrical absence/symmetrical absurdity: Critical notes on the production of actor-network accounts. Journal of Management Studies 41(3): 493–519.

50.

Mercer

(2002) Emancipatory disability research. In: Barnes

Oliver

Barton

(eds) Disability Studies Today. Cambridge: Polity Press, pp. 228–249.

51.

Michael

(2017) Actor-Network Theory: Trial, Trails and Translations. London: Sage.

52.

Miller

Sinanan

(2014) Webcam. Cambridge: Polity Press.

53.

Mladenov

(2017) Governing through personal assistance: A Bulgarian case. Scandinavian Journal of Disability Research 19(2): 91–103.

54.

Mol

(2008) The Logic of Care: Health and the Problem of Patient Choice. London: Routledge.

55.

Moser

(2000) Against normalization: Subverting norms of ability and disability. Science as Culture 9(2): 201–240.

56.

Moser

(2005) On becoming disabled and articulating alternatives: The multiple modes of ordering disability and their interferences. Cultural Studies 19(6): 667–700.

57.

Moser

(2006) Disability and the promises of technology: Technology, subjectivity and embodiment within an order of the normal. Information, Communication & Society 9(3): 373–395.

58.

Moser

Law

(1999) Good passages, bad passages. In: Law

Hassard

(eds) Actor Network and After. Oxford: Blackwell and the Sociological Review, pp. 196–219.

59.

Ohashi

Kato

Hjorth

(2017) Digital genealogies: Understanding social mobile media LINE in the role of Japanese families. Social Media + Society 3(2): 1–12.

60.

Oliver

(1990) The Politics of Disablement: A Sociological Approach. London, UK: Palgrave Macmillan.

61.

Oliver

(2013) The social model of disability: Thirty years on. Disability & Society 28(7): 1024–1026.

62.

Özkul

Humphreys

(2015) Record and remember: Memory and meaning-making practices through mobile media. Mobile Media & Communication 3(3): 351–365.

63.

Park

Kaye

(2019) Smartphone and self-extension: Functionally, anthropomorphically, and ontologically extending self via the smartphone. Mobile Media & Communication 7(2): 215–231.

64.

Pink

Hjorth

Horst

Nettheim

Bell

(2018) Digital work and play: Mobile technologies and new ways of feeling at home. European Journal of Cultural Studies 21(1): 26–38.

65.

Sayes

(2014) Actor-network theory and methodology: Just what does it mean to say that nonhumans have agency? Social Studies of Science 44(1): 134–149.

66.

Schillmeier

(2007) Dis/abling practices: Rethinking disability. Human Affairs 17(2): 195–208.

67.

Shakespeare

(2014) Disability Right and Wrongs Revisited. London: Routledge.

68.

Shumar

Madison

(2013) Ethnography in a virtual world. Ethnography and Education 8(2): 255–272.

69.

Skinner

(2012) The Interview: An Ethnographic Approach. Oxford: Berg.

70.

Tronto

(1993) Moral Boundaries: A Political Argument for an Ethic of Care. New York: Routledge.

71.

Waldherr

Geise

Katzenbach

(2019) Because technology matters: Theorizing interdependencies in computational communication science with actor-network theory. International Journal of Communication 13: 3955–3975.

72.

Watkins

Hjorth

Koskinen

(2012) Wising up: Revising mobile media in an age of smartphones. Continuum 26(5): 665–668.

73.

Wilken

Goggin

Horst

(2019) Location Technologies in International Context. New York: Routledge.

74.

Winance

(2006) Trying out the wheelchair: The mutual shaping of people and devices through adjustment. Science, Technology, & Human Values 31(1): 52–72.

75.

Yan

Schroeder

(2019) Variations in the adoption and use of mobile social apps in everyday lives in urban and rural China. Mobile Media & Communication. doi: 10.1177/2050157919884718.

76.

Huang

Liu

(2017) From ‘connected presence’ to ‘panoptic presence’: Reframing the parent–child relationship on mobile instant messaging uses in the Chinese translocal context. Mobile Media & Communication 5(2): 123–138.